Thursday, June 21, 2018

Round 2 of my first infusion


Good report, this 2nd round of my first infusion went much better. In fact, it sorta proved to me that the nurse for my very first infusion didn't... well... I don't want to say she didn't know what she was doing, but she certainly didn't do very well compared to this last nurse.

Here are some things I didn't have to experience today compared to my awful first time around:

  • Puking! This time when I told them was allergic to Tylenol I wasn't force to take it. 
  • Blown vein.



15 days later and it still looks icky.


  • Being dismissed. I was listened to when I told this new nurse to use my right arm because I'm left handed (and I still had a gnarly bruise on that arm). Cause, Jiminy Cricket, give that arm a break! Plus, unlike last time, before putting in the IV she numbed the sight! Needle in - smooth like butter.
  • Painful burning sensation every time the medicine started pumping in. That sucked last time and apparently that should not happen. It probably means the IV wasn't in correctly. This time, I only notice the medicine pumping in when the IV tubes suddenly felt cooler.
  • ASTHMA ATTACK! I don't think this is any nurses fault. I just had a bad reaction the first time. Was it just because I was acclimating to Ocrevus - probably, or was it because the IV wasn't in correctly - don't know.
  • Dizziness. I am a little dizzy but not like I was last time.
  • Being pumped full of steroids. Because I didn't have an asthma attack this time, there was no need for me to be pumped full of steroids. I did have to have a little before the infusion, but that is routine.
  • Totally wiped out. I was stupid and drove myself last time. I should have known better. Matt took me this time and I am sooo very thankful. I'm still feeling tired, but that is just the nature of Ocrevus infusions.
  • Migraine. The nurses are not allowed to give out Ibuprofen as an alternative. However, I am allowed to take Ibuprofen before my appointment, which I did. Wish I would have known that before my first appointment.
  • Uncomfortable bed. They only had a cart for me the first time. I got terrible neck pain which added to my migraine. After 6 hours I wanted to burn that cart! Today, this little princess got a very comfortable bed and I was smart enough to bring my neck pillow. The nurses said my room had a Zen like atmosphere. 

 After today my next infusions will be every 6 months. Since I now know how it should and should not go, I feel like this infusion stuff isn't so bad. I got this. At least I don't have to worry about forgetting to take medicine every day.


No comments:

Post a Comment