Tuesday, November 29, 2011

Trip to UW Children's Hospital

Yesterday Zach had an appointment at the American Family Children Hospital in Madison (nothing serious, just needed a specialist for a minor issue.  Zach asked that I not blog about it).  It is apart of the UW hospital where I go for my MS appointments.  That place is the most confusing hospital EVER!  You have to take a separate elevator for the parking garage and then there are different elevators for different floors for the actual hospital.  2nd floor in one area doesn't mean you will be on the second floor of the children's area!  AAAHHH!  Who is the sadistic architect for this maze?!
Anyway, my friend Sarah Worthing was kind enough to drive us to the hospital since I was feeling dizzy and my right hand was weak.  I was a little concerned about driving so far while having these symptoms.  Thank God she did drive.  My dizziness increased the minute I stepped into the elevator.  I stumbled a few times but nothing serious until we got to the check-in desk.  That is when it felt like the world was spinning at super speed! Down I went.  I laid there and chuckled while everyone else is gasping and asking if I'm alright.  I explained why I fell, that I was alright and just really embarrassed.  Sarah said my ears were red.  I asked for a wheelchair because I really didn't want to fall on my ass again.  They got me the kind that you can't wheel yourself.  It only had little wheels that lock instantly after the person behind you stops holding in the bar as they were pushing.  Kind of like the safety bar on a lawn mower that will shut off the machine if you let go.  So that meant I had to rely on everyone else to push me where I wanted to go.  Zach took the initiative and wheeled me everywhere.  My feet were not exactly safe from walls and he took that as an opportunity to treat me like a race car.  I'm in a wheel chair;  my hair shouldn't be flowing behind me like I'm in a convertible.
I called Namita in the research lab, because I couldn't find Dr. Fleming's phone number, and told her about my Thanksgiving event and the dizziness I was having.  She got a hold of him and we set up an appointment for tomorrow, Wednesday.  I'm better now.  Dizziness is gone and I've got my strength back, but I'm going to have Joe Scarpelli drive me anyway.  Just in case.
Dr. Fleming called me last night to check on me, what a great guy!  I told him what happened and he explained that as a newbie MS patient it's normal to have a big episode like I did at Thanksgiving, then recover and have "after shocks" for a few days.  And like earth quake after-shocks they are not as violent as the first big event.  They slowly diminish as the days pass.  So far today I only have tingles in my fingers if I look down with my head.  After awhile, if not treated, those MS attacks can cause permanent damage and you can't recover anymore.  I can't wait for my HINT treatments!

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