so apparently I can do a workout inside my house for 45-50 minutes (as long as it is cool in the house) and no MS symptoms show up, but work outside in the muggy humid heat for the same amount of time and I get MS flare up galore.
Hands are shaking and weak. My left eyelid even closed randomly and wouldn't open for a couple of minutes. It's all better at least for now. Still waiting for the hands to go back to normal. I'm writing this blog while speaking into my phone and it translates it into type for me. I really like this technology. I just hope the shaking goes away before I have to interpret tomorrow.
Saturday, June 15, 2013
Monday, April 1, 2013
Last Trial MRI & testing - Good Friday shenanigans!
What a crazy day! It started off normal for a trial day. Grabbed my purse, salt water, stool sample and was out the door. Got there without a hiccup, met with Courtney, and as we walked to labs where they would draw 15 vials of blood I check my phone. Zach left a message that he might need to go to the emergency room. Zach has the tenancy to exaggerate, but I call him back anyway to find out about this new world ending calamity. His stomach hurt so bad he was sure his appendix was about to rupture. I told him it was probably just gas and to just give it a while and it would pass. I decide to call my friend Charli and ask her to check on him anyway...just in case.
Back to testing. They drained me of 14 vials of blood because Courtney took mercy on me when it started to pinch. Then we proceeding to the room where I do the cognitive and physical test and they ask some health questions. That went really well. I told them I only have some tingle and mild weakness in my right hand that only flare up when I'm too hot. While waiting for my visit with Dr. Fleming I call Charli to see what's what. She tells me she called Dean Clinic and while on the phone with a nurse and Matt, Zach doubles over in pain. She decides to take him to the ER and meet Matt there. At this point I am actually worried. The team at UW are super kind and tell me to let them know if I need to leave. Since Matt was closer than me and was already on his way, I figured I would let him handle it.
Meanwhile, back at the UW Dr. Fleming is running late. This is a problem. I have to meet with Dr. Luzzio before my MRI. Dr Luzzio does the "drunk test" as I like to call it. It's similar to the test they give suspected drunk drivers with a few added test. Like, an eye exam, muscle strength, and light poking with a needle to see if it feels the same on both legs, arms, feet, etc. It's soon apparent that is not going to happen and I would have to come back for a separate visit just for Dr. Luzzio. Oh, and another stool sample deposit. So, then we proceed to the MRI when Matt called to update me.
Apparently by the time Matt arrived at the ER Zach was feeling better, because IT WAS JUST GAS! They don't to check in. So Charli decides to take him home. As she is dropping him off several police cars descend on Glen Street! A man running away from the cops jumps my neighbor's fence to try and get away. Charli decides it was best to gather both kids and take them to her house. Thank God she was there!
Right before my MRI I decided to call Charli and get her story of what happened at the ER, and that is when I heard about the cops and the criminal. The UW trial team is floored by the happenings. They even went looking for police reports while I was in the MRI machine but didn't fine anything. I later found out from one of my neighbors that the guy was apprehended. Phew!
Back to testing. They drained me of 14 vials of blood because Courtney took mercy on me when it started to pinch. Then we proceeding to the room where I do the cognitive and physical test and they ask some health questions. That went really well. I told them I only have some tingle and mild weakness in my right hand that only flare up when I'm too hot. While waiting for my visit with Dr. Fleming I call Charli to see what's what. She tells me she called Dean Clinic and while on the phone with a nurse and Matt, Zach doubles over in pain. She decides to take him to the ER and meet Matt there. At this point I am actually worried. The team at UW are super kind and tell me to let them know if I need to leave. Since Matt was closer than me and was already on his way, I figured I would let him handle it.
Meanwhile, back at the UW Dr. Fleming is running late. This is a problem. I have to meet with Dr. Luzzio before my MRI. Dr Luzzio does the "drunk test" as I like to call it. It's similar to the test they give suspected drunk drivers with a few added test. Like, an eye exam, muscle strength, and light poking with a needle to see if it feels the same on both legs, arms, feet, etc. It's soon apparent that is not going to happen and I would have to come back for a separate visit just for Dr. Luzzio. Oh, and another stool sample deposit. So, then we proceed to the MRI when Matt called to update me.
Apparently by the time Matt arrived at the ER Zach was feeling better, because IT WAS JUST GAS! They don't to check in. So Charli decides to take him home. As she is dropping him off several police cars descend on Glen Street! A man running away from the cops jumps my neighbor's fence to try and get away. Charli decides it was best to gather both kids and take them to her house. Thank God she was there!
Right before my MRI I decided to call Charli and get her story of what happened at the ER, and that is when I heard about the cops and the criminal. The UW trial team is floored by the happenings. They even went looking for police reports while I was in the MRI machine but didn't fine anything. I later found out from one of my neighbors that the guy was apprehended. Phew!
Friday, March 15, 2013
Stop the world, I want to get off!
It's been a long hard day! I had a MRI at St. Mary's/Dean in Madison today. I actually got to see my brain pictures right away. I have 2 new active lesions. Oh joy. My neurologist wasn't there today, but her assistant was and so was a student who was shadowing her - both nice ladies. After going over the MRI images, we talked about my options. Since I'm not on birth control there is only one drug I can take, Copaxone. In case you are wondering why birth control matters, it has to do with birth defects and miscarriages. Copaxone is just less dangerous for the developing fetus, but I would have to stop all MS meds if I got pregnant. I'm actually thinking of going on birth control so I have more options. Also Copaxone is a daily injection. Crap! I hate shots! I miss my worms!! (See the bottom of my post about the worms I drank if you have no idea what I'm talking about.) Anyway, I'm not too thrilled about taking any of the MS medications. There are always side effects. At least the co-pay for Copaxone is reasonable - $25/month. But for us, an extra $25 expense plus the doctor appointments, test, gas driving back and forth from Madison all can cause financial strain that I don't need right now. I hope my Pampered Chef business takes off so I can afford to take care of my freakin' disease!
Well, enough of that. After I got home I helped the kids with some school work and then went to take my friend, Monica, to a doctor appointment. She had the same procedure Karen had to stretch out her esophagus. She has had this done before without problems, but it seems this time didn't go as well. She has been in some serious pain and hasn't eaten for 2 days. The doctors were concerned there was possibly an infection or a tear. Thankfully, there was neither. She got better drugs that would coat her throat so she could eat. I pray she feels better soon.
Now, I'm waiting for Matt to get home. He said he wants to take us to a high school production in Beloit of the musical, "Oklahoma." I will blog about how it went later.
Well, enough of that. After I got home I helped the kids with some school work and then went to take my friend, Monica, to a doctor appointment. She had the same procedure Karen had to stretch out her esophagus. She has had this done before without problems, but it seems this time didn't go as well. She has been in some serious pain and hasn't eaten for 2 days. The doctors were concerned there was possibly an infection or a tear. Thankfully, there was neither. She got better drugs that would coat her throat so she could eat. I pray she feels better soon.
Now, I'm waiting for Matt to get home. He said he wants to take us to a high school production in Beloit of the musical, "Oklahoma." I will blog about how it went later.
Saturday, February 9, 2013
Saturday, January 12, 2013
Sam's 11th Birthday
Sam turned 11 today. When we took her measurements today we were surprised to see that she is the same height Zach was at 11. That is the first time that has happened. Usually she is about and inch shorter.
Look at them at 10 compared to them at 11.
Aunt Kiki was the first one to give Sam a present...A new awesome out-fit!
Matt and I got Sam an MP3 player since her old one died and an other out-fit since she out grew most of her clothes.
Side note, I can't believe how warm it has been. By the end of the day, most of the snow has melted.
Aunt Kiki was the first one to give Sam a present...A new awesome out-fit!
Zach got Sam a bucket of perler beads. She love crafting with them.
Instead of cake Sam requested apple crisp. YUM!
(sorry for the bad singing)
Yes, the tall middle candle relight just before Zach stopped recording, but have no fear she blew it out.
New years 2013
Matt had to work New Years Eve day so I decided to take the kids to Wausau to see my new niece Charlotte (Charlie). We left Sunday, Dec. 30th after church. We decided to stop at Mom Baierl's new house. Mabe was there visiting. Had a short visit before continuing to my parents house. New Years Eve day we spend most of the day snowmobiling. What a blast. We stopped at Jamars to eat lunch. I haven't driven a snowmobile since my kids were born! That's more than 13 years ago!
Then we went to Jer and Laura's house to ring in the New Year. Got pizzas and Jer deep fried boneless chicken wings. Yummy! We played cards while Charlotte slept and Sydney and Sam played. Sydney had Sam just a hoppin'!
We Skyped with Matt too. He was "with" us while we counted down! We even gave each other a "cyber-kiss."
New Years day was laid back. My dad pulled Sam and Zach in a sled behind the ATV and then the snowmobile.
Zach got to drive the ATV by himself just around the farm.
Jer, Laura and the girls arrived late afternoon. Sydney played vigorously with Sam again and then zonked out.
I even took a nap with Charlotte in my parent's room. Guys watched the Rose Bowl. Wisconsin lost against Stanford.
It was such a lovely time with my family. And it went by too fast. After leaving my parents house we went to visit Rose aka MomB at her new house. Mabe was there visiting too so we got lunch and then went to Lori's
Visiting with cousins is always a blast!
Then we went to Jer and Laura's house to ring in the New Year. Got pizzas and Jer deep fried boneless chicken wings. Yummy! We played cards while Charlotte slept and Sydney and Sam played. Sydney had Sam just a hoppin'!
New Years day was laid back. My dad pulled Sam and Zach in a sled behind the ATV and then the snowmobile.
Zach got to drive the ATV by himself just around the farm.
Jer, Laura and the girls arrived late afternoon. Sydney played vigorously with Sam again and then zonked out.
I even took a nap with Charlotte in my parent's room. Guys watched the Rose Bowl. Wisconsin lost against Stanford.
It was such a lovely time with my family. And it went by too fast. After leaving my parents house we went to visit Rose aka MomB at her new house. Mabe was there visiting too so we got lunch and then went to Lori's
Visiting with cousins is always a blast!
Saturday, December 29, 2012
Bat in the attic
Went into the attic today and found we had a squatter...A brown bat.
I screamed like a little girl. It didn't move. When I realized it was hibernating and probably not going to fly away, I grabbed the container it was in and ran down stairs.
Matt called a conservator to schedule a drop off, but he (or she) freaked out as Matt tryed to transfer him to a more secure container and flew away. Matt lost track of him fast. He's probably back in our attic and I'm not willing to go in there and search for him.
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