Wednesday, May 20, 2015

Latest Neurology appt.

Went to my first appointment with my new neurology doc, Dr. Luzzio.  Matt went with me, cause he's awesome.  Driving that far wipes me out now.  I haven't seen a neurologist in about 3 years.  I haven't had much happening on the MS front so I put it off.  Plus, my favorite neuro doc, Dr. fleming, retired and it really bummed me out.  I remember Dr. Luzzio from when I was on the HINT trial - I saw him occasionally.  I like him. He's funny and personable.  He had a student shadowing with him.   Pretty cool kid.  The student (I think his name was John. I'm going to call him John.) did the preliminary exam.  Asked what my symptoms have been recently and all that.  

If you are interested here is the list:
  • dizziness/vertigo
  • tingles all over
  • left leg going limp occasionally
  • cognitive issues.
    • forgetfulness
    • speak delays
  • fatigue
Luzzio wants me to get a new MRI soon and on some MS medication.  He said he doesn't know if there will be a HINT trial again or not.  Other countries have approved the treatment, but not the good ol' US of A.  Thanks FDA!  Insert expletive here.

Luzzio didn't prescribe me anything.  He wants me to find out what my health insurance covers first. There's no point in prescribing me something I can't get.  He writes down some suggestions of meds, tells us to find out what I can have, and to call them with what I want.  He tells me to stick with my vitamins, eat right, exercise, and keep my stress low.

The appointment ended around 1pm so we decided to grab some lunch.  Matt drives around for a restaurant and I call our insurance company to find out what meds are covered. Get a head start right?! HA!  FOOL!

Pandora's Box, aka, health insurance company can't help me  --> sends me to prescription insurance.  "Oh your 'special prescriptions' that's a different company" ---> transfers me to said company that I've never heard of.  I finally talk to the right person...I think.  I explain that I just need a list of  Multiple Scleroses meds that are covered under my insurance.  Nope, she needs me to list each one of the 12 individually.  Okay, fine, I'll list them and just tell me yea or nay.  Ha ha no.  After each one she tells me that I need a doctors prescription and about how much it costs.  Yeah, after the 4th one I was done, cranky and hungry.

My blessed hubby took me to Claddagh Irish Pub - Yum.  Two thumbs up.  You should go there if you haven't already.

On the drive home I started feeling very overwhelmed and broke down and cried.  So much for keep the stress low.  Matt told me I wasn't allowed to research anymore tonight because of my breakdown.  The fun will have to wait until tomorrow.  Oh joy.

Spelling and grammar errors will happen when I blog without glasses and very emotional.  Deal.